Connective Tissue Disorders Network Australia (CTDNA) support, advocate and bring awareness to people living with a heritable connective tissue disorder (HTCDs). HCTDs are a group of genetic conditions affecting the body’s connective tissues. Connective tissue provides the support and structure to other tissue and organs in the body. Marfan syndrome is a rare genetic disorder that affects 1 […]
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1 event,Light Australia Green (LAGi) is an ongoing, year-round initiative that includes a series of events, culminating in World Cholangiocarcinoma Day, held on the third Thursday of February each year. Light Australia Green is an effort to unite people nationwide around a common goal: A comprehensive annual campaign of green-themed events, symposiums, and innovative initiatives dedicated […] |
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1 event,Rare Disease Day is a globally coordinated movement dedicated to rare diseases, striving for equity in social opportunities, healthcare, and access to diagnosis and therapies for people living with a rare disease. Since its creation in 2008, Rare Disease Day has played a crucial role in building an international rare disease community—multi-disease, global, and diverse, […] |