Connective Tissue Disorders Network Australia (CTDNA) support, advocate and bring awareness to people living with a heritable connective tissue disorder (HTCDs). HCTDs are a group of genetic conditions affecting the body’s connective tissues. Connective tissue provides the support and structure to other tissue and organs in the body. Marfan syndrome is a rare genetic disorder that affects 1 […]
Light Australia Green (LAGi) is an ongoing, year-round initiative that includes a series of events, culminating in World Cholangiocarcinoma Day, held on the third Thursday of February each year. Light Australia Green is an effort to unite people nationwide around a common goal: A comprehensive annual campaign of green-themed events, symposiums, and innovative initiatives dedicated […]
Every three days, an Australian is diagnosed with a Bone Marrow Failure Syndrome. The aim of National Bone Marrow Failure Syndrome Awareness Week is to raise awareness of Bone Marrow Failure Syndromes and their impact on patients and families, increase an understanding of the work of Maddie's Visit and the services offered, and to seek […]
Every three days, an Australian is diagnosed with a Bone Marrow Failure Syndrome. The aim of National Bone Marrow Failure Syndrome Awareness Week is to raise awareness of Bone Marrow Failure Syndromes and their impact on patients and families, increase an understanding of the work of Maddie's Visit and the services offered, and to seek […]
Every three days, an Australian is diagnosed with a Bone Marrow Failure Syndrome. The aim of National Bone Marrow Failure Syndrome Awareness Week is to raise awareness of Bone Marrow Failure Syndromes and their impact on patients and families, increase an understanding of the work of Maddie's Visit and the services offered, and to seek […]
Every three days, an Australian is diagnosed with a Bone Marrow Failure Syndrome. The aim of National Bone Marrow Failure Syndrome Awareness Week is to raise awareness of Bone Marrow Failure Syndromes and their impact on patients and families, increase an understanding of the work of Maddie's Visit and the services offered, and to seek […]
March is Lymphoedema Awareness Month, and Old Treasury Building is lighting up in blue and teal to raise awareness of lymphoedema. Lymphoedema is the term given to swellingresulting from malfunction of the lymphatic system. It impacts adversely on the physical, emotional, social and financialwellbeing of people living with the condition. #ShineALightOnLymphoedema #ShineALight #Lymphoedema #WLD Old […]
Every three days, an Australian is diagnosed with a Bone Marrow Failure Syndrome. The aim of National Bone Marrow Failure Syndrome Awareness Week is to raise awareness of Bone Marrow Failure Syndromes and their impact on patients and families, increase an understanding of the work of Maddie's Visit and the services offered, and to seek […]
Every three days, an Australian is diagnosed with a Bone Marrow Failure Syndrome. The aim of National Bone Marrow Failure Syndrome Awareness Week is to raise awareness of Bone Marrow Failure Syndromes and their impact on patients and families, increase an understanding of the work of Maddie's Visit and the services offered, and to seek […]
Since 2019 SARS-CoV-2 has been destroying and taking lives across the globe. Over the years, more and more people have been devastated by the long-lasting health and financial impacts of a Covid infection. The need for more awareness and advocacy has never been greater. In 2023 Long Covid patients, caregivers and allies began this Long […]
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