Rare Disease Day is a globally coordinated movement dedicated to rare diseases, striving for equity in social opportunities, healthcare, and access to diagnosis and therapies for people living with a rare disease. Since its creation in 2008, Rare Disease Day has played a crucial role in building an international rare disease community—multi-disease, global, and diverse, […]
Every three days, an Australian is diagnosed with a Bone Marrow Failure Syndrome. The aim of National Bone Marrow Failure Syndrome Awareness Week is to raise awareness of Bone Marrow Failure Syndromes and their impact on patients and families, increase an understanding of the work of Maddie's Visit and the services offered, and to seek […]
Every three days, an Australian is diagnosed with a Bone Marrow Failure Syndrome. The aim of National Bone Marrow Failure Syndrome Awareness Week is to raise awareness of Bone Marrow Failure Syndromes and their impact on patients and families, increase an understanding of the work of Maddie's Visit and the services offered, and to seek […]
Every three days, an Australian is diagnosed with a Bone Marrow Failure Syndrome. The aim of National Bone Marrow Failure Syndrome Awareness Week is to raise awareness of Bone Marrow Failure Syndromes and their impact on patients and families, increase an understanding of the work of Maddie's Visit and the services offered, and to seek […]
Every three days, an Australian is diagnosed with a Bone Marrow Failure Syndrome. The aim of National Bone Marrow Failure Syndrome Awareness Week is to raise awareness of Bone Marrow Failure Syndromes and their impact on patients and families, increase an understanding of the work of Maddie's Visit and the services offered, and to seek […]
March is Lymphoedema Awareness Month, and Old Treasury Building is lighting up in blue and teal to raise awareness of lymphoedema. Lymphoedema is the term given to swellingresulting from malfunction of the lymphatic system. It impacts adversely on the physical, emotional, social and financialwellbeing of people living with the condition. #ShineALightOnLymphoedema #ShineALight #Lymphoedema #WLD Old […]
Every three days, an Australian is diagnosed with a Bone Marrow Failure Syndrome. The aim of National Bone Marrow Failure Syndrome Awareness Week is to raise awareness of Bone Marrow Failure Syndromes and their impact on patients and families, increase an understanding of the work of Maddie's Visit and the services offered, and to seek […]
Every three days, an Australian is diagnosed with a Bone Marrow Failure Syndrome. The aim of National Bone Marrow Failure Syndrome Awareness Week is to raise awareness of Bone Marrow Failure Syndromes and their impact on patients and families, increase an understanding of the work of Maddie's Visit and the services offered, and to seek […]
Kidney disease is projected to become the 5th leading cause of death worldwide by 2050, rising from the 18th leading cause in 1990. Sadly, 1.8 million Australians are completely unaware they are living with kidney disease. As they progress toward kidney failure, many of these people will either require a transplant or kidney dialysis to […]
Since 2019 SARS-CoV-2 has been destroying and taking lives across the globe. Over the years, more and more people have been devastated by the long-lasting health and financial impacts of a Covid infection. The need for more awareness and advocacy has never been greater. In 2023 Long Covid patients, caregivers and allies began this Long […]
