Connective Tissue Disorders Network Australia (CTDNA) support, advocate and bring awareness to people living with a heritable connective tissue disorder (HTCDs). HCTDs are a group of genetic conditions affecting the body’s connective tissues. Connective tissue provides the support and structure to other tissue and organs in the body. Marfan syndrome is a rare genetic disorder that affects 1 […]
Light Australia Green (LAGi) is an ongoing, year-round initiative that includes a series of events, culminating in World Cholangiocarcinoma Day, held on the third Thursday of February each year. Light Australia Green is an effort to unite people nationwide around a common goal: A comprehensive annual campaign of green-themed events, symposiums, and innovative initiatives dedicated […]
Rare Disease Day is a globally coordinated movement dedicated to rare diseases, striving for equity in social opportunities, healthcare, and access to diagnosis and therapies for people living with a rare disease. Since its creation in 2008, Rare Disease Day has played a crucial role in building an international rare disease community—multi-disease, global, and diverse, […]
March is Lymphoedema Awareness Month, and Old Treasury Building is lighting up in blue and teal to raise awareness of lymphoedema. Lymphoedema is the term given to swellingresulting from malfunction of the lymphatic system. It impacts adversely on the physical, emotional, social and financialwellbeing of people living with the condition. #ShineALightOnLymphoedema #ShineALight #Lymphoedema #WLD Old […]
Every three days, an Australian is diagnosed with a Bone Marrow Failure Syndrome. The aim of National Bone Marrow Failure Syndrome Awareness Week is to raise awareness of Bone Marrow Failure Syndromes and their impact on patients and families, increase an understanding of the work of Maddie's Visit and the services offered, and to seek […]
Kidney disease is projected to become the 5th leading cause of death worldwide by 2050, rising from the 18th leading cause in 1990. Sadly, 1.8 million Australians are completely unaware they are living with kidney disease. As they progress toward kidney failure, many of these people will either require a transplant or kidney dialysis to […]
Since 2019 SARS-CoV-2 has been destroying and taking lives across the globe. Over the years, more and more people have been devastated by the long-lasting health and financial impacts of a Covid infection. The need for more awareness and advocacy has never been greater. In 2023 Long Covid patients, caregivers and allies began this Long […]
Multiple myeloma blood cancer is reported to affect more than 176,000 people worldwide each year. However, this number likely underestimates the true impact of the disease. In many parts of the world, myeloma is underdiagnosed or not consistently reported. Myeloma is the 2nd most common blood cancer, but awareness remains low. Together, we can change […]
The Good Friday Appeal is a charity that raises money to enable The Royal Children’s Hospital in Melbourne to provide world class care for our children. 2026 marks the 95th Appeal, bringing all sectors of the community together to raise funds. From spare change to major fundraisers, every contribution helps deliver world-class care. Old Treasury […]
Tonight, Old Treasury Building will turn red in support of World Haemophilia Day. Join us as we raise awareness of haemophilia, von Willebrand disease, rare clotting factor deficiencies, inherited platelet disorders and other rare bleeding disorders. This year’s theme, ‘Diagnosis: First step to care’ highlights the hundreds of thousands of people with bleeding disorders worldwide […]
