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DTSTART;VALUE=DATE:20240907
DTEND;VALUE=DATE:20240908
DTSTAMP:20260505T003837
CREATED:20240906T021907Z
LAST-MODIFIED:20240906T021907Z
UID:10000136-1725667200-1725753599@www.oldtreasurybuilding.org.au
SUMMARY:World Duchenne Day
DESCRIPTION:World Duchenne Day is on September 7th and the colour red represents DMD. \nOne in 5000 newborn boys in the world is affected by a rare and fatal disease: Duchenne Muscular Dystrophy (DMD). Seems like a small group\, but the 250.000 patients around the globe think big and have big dreams. Duchenne Parents have set up organizations in their countries\, and all of them work day by day to guarantee access to care\, to improve research\, to educate patients and families. \n\n\n\nThe WDAD 2024 theme is ‘Raise your voice for Duchenne’. With this year’s theme\, WDAD supports creating a society that provides equal opportunities for all. \n\n\n\nOld Treasury Building will be lit in red for this event from sunrise to sunset.
URL:https://www.oldtreasurybuilding.org.au/event/world-duchenne-day/
LOCATION:Old Treasury Building\, 20 Spring Street\, East Melbourne\, VIC\, 3002\, Australia
CATEGORIES:Lighting
ORGANIZER;CN="Old Treasury Building":MAILTO:bookings@otb.org.au
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DTSTART;VALUE=DATE:20240909
DTEND;VALUE=DATE:20240910
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CREATED:20240906T022133Z
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UID:10000138-1725840000-1725926399@www.oldtreasurybuilding.org.au
SUMMARY:International Fetal Alcohol Spectrum Disorder (FASD) Awareness Day
DESCRIPTION:The 9th day of the 9th month is globally acknowledged as International Fetal Alcohol Spectrum Disorder (FASD) Awareness Day\, and the whole of September is now known as FASD Awareness Month. \nFASD is the leading preventable developmental disability in Australia\, which occurs due to prenatal alcohol exposure. People with FASD can experience challenges such as physical and emotional developmental delay; impaired speech and language development; learning problems\, such as issues with memory and attention; and difficulty controlling behaviour. \nThe Red Shoes Rock campaign was started by RJ Formanek\, an adult living with FASD\, who decided to wear red shoes to stand out\, and start conversations about what is an invisible disability. \nOld Treasury Building will be lit in red for this event from sunrise to sunset.
URL:https://www.oldtreasurybuilding.org.au/event/international-fetal-alcohol-spectrum-disorder-fasd-awareness-day-2/
LOCATION:Old Treasury Building\, 20 Spring Street\, East Melbourne\, VIC\, 3002\, Australia
CATEGORIES:Lighting
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